Marfan Syndrome is a genetic condition, which may affect more than one member of the same family.
People with Marfan Syndrome are usually exceptionally tall with long fingers and rather flat feet. They may have a spinal curve (scoliosis) and be shortsighted. The skin may develop stretch marks. The two heart problems that are most serious are enlargement of the main body artery and leaky heart valves.
Marfan Syndrome is a variable condition with some people only very mildly affected. In childhood, it rarely causes difficulties. Sometimes it can be difficult to be sure whether or not the condition is present as not everyone has all the signs and there is no reliable test. If this is the case, then it may be necessary to review the children as they grow older to see if they truly have the condition or not.
Before travelling anywhere unusual or a long distance, make sure your child has: